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Neurofibromatosis (multiple)

Oct 11 20213 people replied
Description Of Condition:

Hello! I was diagnosed with neurofibromatosis in 2013. In March of the same year, I had craniotomy in Guangdong Provincial People's Hospital, and my right ear hearing could not hear any sound at all. Now my left ear hearing began to decline gradually. I had craniotomy again in September 2020, and fainted several times. Now I am taking antiepileptic drugs and liver protection drugs. I would like to ask whether there are domestic experts studying effective drugs for the treatment of this disease? If so, when will it be listed? Can you eat milk, beef and so on? What can I eat and what can't I eat? What should we pay attention to at ordinary times?

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